I know it’s a said truth Maysis can be a part of the process when it comes to chemo. Yesterday I woke up at 4am feeling like I was on a ship and it was really stormy. The whole world was spinning and I was shaking. I was worried I was getting sick so I used my new thermometer for the first time. Apparently at 37.5 degrees you have to contact the LOC (London Oncology Centre) and at 38 degrees you have to go to hospital. I’m normally not a fuzzy person but these rules have been firmly slapped on me for the last couple of weeks. Yesterday morning I waited until 9.30 to take my temperature, it was 36.7! High five me!
The problem is I get tablets against the nausea. I get 3 tablets per day. Yesterday I took the first at 4.30am the second around 11.30am the third one at 6.40pm and the day was still broken up by me having to lie down for a short sleep twice. It was mums birthday so my aim was just to be able to go out for a short early dinner at next door restaurant with my mum and mother in law. Mission completed!
We came back home at 8.30pm to watch some of Red Nose Day on telly. After seeing Stephen Hawkins turning in to a transformer and zapping up the annoying carer (played by David Wallians) it was again time for bed.
At 1am I woke up again. Not too nauseas but as I’d already had my sleep during the day, my body wasn’t all tuned in to go to sleep. Then came 1.35 and a wave of nausea. I now think time is somewhere in region of 2.30am. I can’t take my anti nausea tablet because that will screw up my day and today we are booked in to see War Horse at Drury lane so I really need to be on top form at 2.30pm.
I have mentally set my dosing of medicine:
Anti sickness 6am 1pm 7pm
Antibiotics 6am 12pm 16pm 20pm
Pain killer 6am 12pm 7pm (if needed)
Steroids after breakfast, after lunch
The other meds have been finished. As they were more for first and second day of treatment. I still have 3 more possible meds, but unfortunately neither of them is against nausea. I’m not sure what to do now. Fully awake in a Friday night London. Not as loud as the Saturday night last week but I’m too much of a country bumpkin to ignore the strange sounds of sirens and bottle bank emptyings. My curiosity/imagination for following up compleatly made-up-in-my-head accidents/special finds/terror attacks/biological war fare really does not help to settle me back to sleep. Nor does the ongoing nausea/sickness.
I just thought I’d get this out there. I’ve sworn to myself to be the best and strongest I can be. If this is it, I’m not sure I’m cut out for this “job”, but what won’t kill you makes you stronger they say, well Hulk move over, I’m coming to get you!
Oh and thank you everyone that sends me emails of encouragements/comments on here or Facebook/Instagram/Twitter I know for many it’s not “their thing” the whole digital media, but it definitely makes me feel less lonely here!
Keep smiling 🙂 it actually makes you feel less sick!!!!